Can You Cure The Disease?
In this week’s episode we talk to one family who is on a mission to find a cure for their boy Michael. He was diagnosed a hereditary spastic paraplegia type 50, otherwise known as SPG50. Children afflicted with this genetic disorder present with a variety of symptoms, including global developmental delay, microcephaly, seizures, malformation of the brain, and hypotonia. What would it take to find a cure for your child’s rare disease? I talk to Terry, Michael’s father and we speak about the process for raising money, hiring a team and what this entails. Would you give up a good chunk of your life, your money, and even your career to find a cure for your child? What if the cure never comes?